Rett Syndrome
Rett syndrome is a rare genetic neurological and developmental disorder that affects the way the brain develops, causing a progressive loss of motor skills and language. It primarily affects females, with most babies appearing to develop typically for the first six months before losing previously acquired skills such as the ability to crawl, walk, communicate, or use their hands. The genetic changes that cause Rett syndrome occur randomly, usually in the MECP2 gene, and appear to result in problems with protein production critical for brain development. Source: Mayo Clinic
Since thermoregulation is governed by this same autonomic system, individuals with Rett syndrome struggle to regulate body temperature normally. Because autonomic control of sweating and heat dissipation is compromised, individuals with Rett syndrome are also at elevated risk for heat-related distress in warm environments — a concern especially relevant for caregivers managing activity, outdoor time, or summer heat.
"Our daughter, Eva, has a rare genetic disorder called Rett syndrome. It’s caused her to lose the ability to walk, talk, and purposefully use her hands. Because of Rett syndrome, she does not sweat. Your cooling vest and neck wrap have been a game changer for her and our family. It’s allowed her to go outside during times she otherwise would have been unable to. It’s kept seizures that are triggered due to heat at bay. It’s also allowed her to be more comfortable and to last longer during therapy sessions and outings that she otherwise would have physically and emotionally melted down at due to overheating." - Lauren in Philadelphia, Pennsylvannia
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The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis, or treatment. Please consult a licensed healthcare practitioner before using any hot/cold therapy or body cooling product for a medical condition.